Standardizing and Linking Diverse Registry and Other Real-World Observational Data Yields Enhanced Understanding of Rare Diseases and Their Treatments.

In this whitepaper, UBC will show the value of standardizing and linking diverse data from a registry into a common structure to assemble real world evidence to complement ad hoc observational research. This HIPAA-compliant “universal-registry” approach efficiently improves evidence generation to enable better insight into disease natural history and treatment patterns, particularly for rare diseases. This process includes data linkage via tokenization in order to enhance registry data with other healthcare information.

To download this complimentary article, complete the form to the right. To learn more about UBC’s technology for linking and assembling diverse data sets, click here.