Resource Guide for Patients Living with Rare Diseases

Download our Resource Guide for Patients Living with Rare Diseases to find essential information and support to understand your rare disease diagnosis, connect with advocacy organizations, and explore treatment options including:

  • Contacting GARD (Genetic and Rare Disease Information Center)           
  • Meeting with a genetic counselor
  • Connecting with the rare disease community and learn from community advocates
  • Addressing concerns about participating in a clinical trial
  • Diversity, equity and inclusion for rare diseases

UBC’s Glynis Daniel-Archibald, MD, MBA, Marita Lynott, and Lashawnya Tanks, provide options and resources to help navigate a rare disease diagnosis in this guide.  By leveraging the wealth of information and support available we can make strides towards better health and a brighter future.

Get started by completing the form to access our Resource Guide for Patients Living with Rare Diseases.

 

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Bekki Bracken Brown

President & Chief Executive Officer

Bekki Bracken Brown serves as the President and CEO of UBC, guiding the company’s mission and values, including the improvement of access for patients to receive better outcomes. She oversees all aspects of UBC, such as operations, business growth strategy, sales and marketing, and acquisition support.

With over 20 years of industry experience, Ms. Brown brings knowledge from a successful career in senior management from her tenure at Quintiles, INC Research, and, most recently, with Syneos Health. She’s been a member of the North Carolina BIO Board of Directors since 2019. She is also a member of the Healthcare Businesswomen’s Association — Southeast Chapter and CHIEF, an organization that supports women executive leaders. Ms. Brown earned her bachelor’s degree at Duke University.