Optimizing Evidence Generation in Rare Disease Studies with Patient-Centric Strategies
Real-world data (RWD) and real-world evidence (RWE) are emerging as strategic tools in rare disease study design to address research challenges with real-world solutions. Our latest white paper “Optimizing Evidence Generation in Rare Disease Studies with Patient-Centric Strategies”, explores modern study designs and the use of RWD/RWE for:
- Optimizing patient identification, recruitment & retention
- Incorporating decentralized study elements
- Demonstrating value support regulatory decision-making
- Planning your RWE strategy
UBC’s Executive Director of Real-World Study Solutions Judy Lytle and Executive Director of Clinical Research Bruce Smith discuss how early strategic planning of evidence generation is pivotal for rare disease studies.
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Bekki Bracken Brown
President & Chief Executive Officer
Bekki Bracken Brown serves as the President and CEO of UBC, guiding the company’s mission and values, including the improvement of access for patients to receive better outcomes. She oversees all aspects of UBC, such as operations, business growth strategy, sales and marketing, and acquisition support.
With over 20 years of industry experience, Ms. Brown brings knowledge from a successful career in senior management from her tenure at Quintiles, INC Research, and, most recently, with Syneos Health. She’s been a member of the North Carolina BIO Board of Directors since 2019. She is also a member of the Healthcare Businesswomen’s Association — Southeast Chapter and CHIEF, an organization that supports women executive leaders. Ms. Brown earned her bachelor’s degree at Duke University.